A NJ Disabled Child Denied A Transplant

The parents of a 3-year-old New Jersey girl say she’s being denied a kidney transplant because of her mental disabilities, but experts caution the situation may be much more complex. – WRAL

Rivera wrote that a doctor, whom she did not name, told her and her husband, Joe Rivera, that Amelia wouldn’t be eligible for a transplant because of her quality of life and her mental condition.

“I put my hand up. ‘Stop talking for a minute. Did you just say that Amelia shouldn’t have the transplant done because she is mentally retarded. I am confused. Did you really just say that?'” she wrote. “I begin to shake. My whole body trembles and he begins to tell me how she will never be able to get on the waiting list because she is mentally retarded.” – MSNBC

After reading these articles, I looked online for Chrissy Rivera’s post.  I wanted to read what happened in her words.  I found it, and it really angered me.  I’m not sure if it was the doctor’s words or the social worker’s words that upset me more. Just the knowledge that there are people out there that think this way scares me.

I understand how Chrissy feels.  She is fighting for her child’s life, and is facing a battle of bigotry.  I have had doctors that don’t understand my child.  That have said that I need to “make” him do something, or not “let” him do something.  I have never had to face this kind of battle.  With all of my son’s developmental problems and health issues, none have been life threatening.

In my opinion, a child’s mental status should not factor into a transplant.  It’s her health status that should matter.  Is she physically able to survive a transplant?  That’s all that matters.  It sounds like Chrissy is a lot like me.  She will do anything for her child.  I can understand that.  What she is going through is difficult enough, but to add to it with this kind of treatment from “professionals”?  It’s sickening.

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